the national pediatric research network act of 2013 (113hr225ih). bill, h.r. 225, introduced united states house of representatives in 113th congress. bill passed house on february 4, 2013.
the bill amend public health service act authorize director of national institutes of health (nih), in carrying out pediatric research initiative, establish national pediatric research network.
the bill authorizes director of nih award funding public or private nonprofit groups groups can use plan, establish, or improve pediatric research consortia. money can used provide basic operating support consortia, including doing actual clinical research , training other researchers. awards should go 20 or fewer consortia. bill goes greater specifics characteristics of these consortia , rules must agree follow in order funding. bill indicates support 5 years, option of renewal.
the bill requires director of nih ensure of awards go consortia focus on pediatric rare diseases of conditions , treatment. requires creation of data coordinating center network different doctors, hospitals, , clinics research can pooled. bill includes variety of reporting requirements , established requirement consortia cooperate centers disease control , prevention (cdc) track patients.
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